Down Syndrome Awareness
March 21 is Down Syndrome Awareness Day - 3/21 - (October is Down Syndrome Awareness Month) - when we take a closer look at some of the details about Down Syndrome (Down instead of Down’s). If you aren’t familiar with what Down Syndrome is or how it is identified, you can read more about it with the National Down Syndrome Society or some of our local resources for kids with special needs.
Kids with Down Syndrome have a range of necessary care or treatment. Some may need more extensive medical care or treatment, while others may go on leading typical and healthy lives. About 6,000 babies with Down Syndrome are born in the US each year (NSDSS), with increased life expectancy as modern science progresses.
As kids with Down Syndrome grow up and become more and more integrated in everyday activities and occupations, it is inevitable that awareness does not increase. However, it is important to address some of the questions that people may have and help everyone understand that those with Down Syndrome can lead fulfilling lives with maximum independence.
Misconceptions About Down Syndrome
Sometimes people “learn” things or hear conjecture about those with Down Syndrome and it is often not true. Science is progressing and aiding in promoting longer life expectancies for those with Down Syndrome, so it is a slight misconception that those with DS have a shorter life expectancy. It is not quite as old as a typical person, but it is significantly longer now than years before.
Other common misconceptions center around abilities, like reading or writing, speaking, memory, or the ability to work or perform job duties. People with Down Syndrome can do anything they decide to do! Their abilities are different, but they have the ability to learn and grow while experiencing complex emotions. The key is, childhood development happens with different timing than typical kids, so it is important not to compare.
Associated Medical Issues
Typically the presence of Trisomy 21 (Down Syndrome) indicates a greater chance of some health conditions. Congenital heart defects are very common (about 50% chance) with Down Syndrome, along with hearing or vision impairments. Kids with Down Syndrome are more susceptible to things like infections, sleep apnea, and breathing problems but are also more at risk for childhood leukemia and thyroid problems. It is important to recognize the increased chances of illness and to be carefully monitoring health with primary care providers.
Although kids with Down Syndrome have a greater likelihood of developing or being born with some of these associated medical issues, monitoring and early detection are crucial in promoting lasting health.
How Does It Affect Gross Motor Development?
Down Syndrome also can affect gross motor development because a typical result is low muscle tone and sometimes loose ligaments. So gaining strength can be more challenging, and development may take more time.
A physical therapist can guide a child through stages of development by monitoring their progress and how comfortable they are learning more and develop new skills. Physical therapy for Down Syndrome can also help children develop a foundation of reinforcement for movement and posture as they grow.
The National Association for Down Syndrome
Individuals with Down Syndrome and their families are more accepted in the community and the NADS has played an important role in advancing awareness. The organization got started in 1961 by parents of kids with Down Syndrome. Their mission is to support those with Down Syndrome in achieving their full potential (NADS). They operate in the Chicago area, but offer many different resources for parents or caregivers. Along with their support for families, they make great efforts in public awareness and promote advocacy through education.
National Down Syndrome Society
Much like the NADS, the National Down Syndrome Society aims to promote change to allow for an enhanced quality of life for those with Down Syndrome. Their vision supports the development of individuals with Down Syndrome as valued members of communities everywhere (NDSS).
They have employment programs in place along with different corporate partners, and resources for individuals and caregivers to learn more about how to aim for success. For volunteers, they have plenty of great events and opportunities to get involved!
Promoting Independence
Children with Down Syndrome need to be encouraged to explore and learn at their own pace. While development is individualized, a health plan can really help ensure kids have the best chance at reaching their maximum potential. Early intervention plays a key role in personal independence later in life. As your child develops, it’s important to remember that you are not alone, and there are lots of resources at your disposal for community and education.
If you’re looking to get started with occupational therapy, physical therapy, or speech therapy for your child with Down Syndrome, get in touch with us at Tilton’s Therapy for Tots. Our team is dedicated to helping kids succeed with the best tools for them. Because we are able to provide mobile therapy for kids in their natural environment, it allows us to help implement good practices at home, school, daycare, etc.
Support those with Down Syndrome by spreading awareness this October for Down Syndrome Awareness month (and every other month!) Follow us on Facebook, Instagram, and Twitter to get updates and join in on the conversation. Sign up for our newsletter to get the details in advance along with great resources and activities for the family to continue learning together.
Additional Resources:
https://www.ndss.org/resources/physical-therapy-down-syndrome/
https://www.ndss.org/about-down-syndrome/down-syndrome/
https://kidshealth.org/en/parents/down-syndrome.html
https://www.globaldownsyndrome.org/about-down-syndrome/misconceptions-vs-reality/
https://www.nads.org/about-us/
Learn About Down Syndrome and Dental Care:
https://www.emergencydentistsusa.com/down-syndrome-and-dental-care/
