JUSTin HOPE Foundation

Articles

May 1

JUSTin HOPE Foundation was created in 2011 in Reno, NV, by the parents of a special young man named Justin Reitz. When Justin was two years old, he was diagnosed with a neurodevelopmental disorder. As his parents navigated this overwhelming change and encountered countless questions in their journey to help their son, they realized that there was a lack of support and resources for families in similar circumstances. It led them to create the organization to help families understand and receive support for their children with neurodevelopmental disorders or Autism Spectrum Disorder (ASD). They realize the massive effect these diagnoses can have on the life of everyone in the family and believe that “a little bit of help gives a lot of hope.”

“The mission of the JUSTin HOPE Foundation is to give hope to the families and individuals with Intellectual and Developmental Disabilities by promoting inclusion and creating opportunities through education/training and family support to maximize the individual’s potential.”
— JUSTin HOPE Foundation

Intellectual & Developmental Disabilities

Cognitive function and skill development relate to intellectual or developmental disabilities. A person with intellectual or developmental disabilities typically has limited skills in social development, self-care, or communication. Disability is caused by a variety of factors such as complications during brain development, genetic disposition, exposure to toxins, birthing problems, injury, or disease — although sometimes the cause is unknown. Intellectual and developmental disabilities are characterized by a range of different abilities and conditions which can become apparent during infancy, youth, or adolescence.

Autism Spectrum Disorder (ASD)

Most commonly associated with a difference in social skills and communication, Autism Spectrum Disorder is typically called a developmental disorder because it can affect a child’s development over time. There are no specific symptoms of ASD which are present in every case, which is why it is referred to as a “spectrum.” Symptoms can range from extreme to very mild depending on the person.

Down Syndrome

As a result of an extra copy of chromosome 21, Down Syndrome is characterized by varying degrees of intellectual disabilities as well as physical symptoms. Latency in developmental milestones is an indicator of Down Syndrome, as well as differences in physical appearance such as lower muscle tone, smaller head, ears, or mouth, a shorter neck, and eyes with extra skin near the inner corner. Although they may experience problems or delays in learning, individuals with Down Syndrome can work to meet any and all developmental milestones and continue to live a fulfilling, independent life.

Fragile X Syndrome

Similar to Autism Spectrum Disorder and Down Syndrome, Fragile X syndrome is a developmental disorder which can affect a person’s ability to learn. Symptoms can range from mild to severe depending on the individual. As with other intellectual and developmental disorders, behavior, cognition, speech and language, and sensory capabilities are affected.

Attention-Deficit/Hyperactivity Disorder (ADHD)

Impulse control is a commonly known symptom of ADHD. Behavior can sometimes cause issues for children in school due to an inability to sit still, be quiet, or stay focused.

Cerebral Palsy

Affecting vestibular function, cerebral palsy causes imbalance and problems with posture. Many individuals with cerebral palsy require assistive devices in order to increase mobility. They may experience muscle spasms or have difficulty controlling their movement.

Fetal Alcohol Syndrome

Drinking alcohol while pregnant can cause problems such as fetal alcohol syndrome. The blood in the mother’s body passes along to the developing baby and alcohol in the mother’s blood means alcohol in the baby’s blood as well. Fetal alcohol syndrome can be characterized by intellectual disability, delays in speech, memory problems, lack of coordination, organ problems, vision problems, sleep issues, and other learning disabilities.

Muscular Dystrophy

Muscle groups throughout the body are affected by muscular dystrophy. Although it is rare, muscular dystrophy can greatly affect an individual’s independence and mobility. Disease in the muscles is typically inherited, although a genetic abnormality can cause muscular dystrophy as well.

Tourette Syndrome

The nervous system is affected by Tourette Syndrome and is characterized by “tics.” Repeated and sudden movements, vocal expressions, or twitches occur without intention. Similarly to hiccups, the body creates the movement or sound and it is difficult to control.

JUSTin HOPE Programs

Through their programs and resources, JUSTin HOPE helps families and creates new opportunities for individuals with developmental or intellectual disabilities reach their maximum potential.

Giving Awards Program

For parents and families in need of financial assistance, the foundation offers assistance. By working with community partners and businesses, they are often able to provide families with supplies, equipment, or therapeutic support.

Community Safety

JUSTin HOPE partners with first responders in the community to better equip them to interact with individuals with autism or other neurodevelopment disabilities.

Family Support

Every month, JUSTin HOPE Foundation hosts support group meetings or workshops. The meetings provide a great opportunity for families to connect to one another and create a network of support.

Resources

A new diagnosis often leads to lots of questions. JUSTin HOPE offers resources for parents to help them navigate the sometimes challenging path ahead.

Respite

For caregivers, in-home respite care can provide such relief. Their staff is highly trained and qualified to provide care for your loved ones at home.

How to Contribute

If you are inclined to support this wonderful foundation, there are many ways to get involved. You can sign up to donate once, monthly, quarterly, or annually. JUSTin HOPE also accepts in-kind donations of new or gently used items. In addition, you can become a sponsor, participate in a peer fundraising campaign, or become a volunteer for their foundation.

For children and families with developmental disabilities, understanding what steps to take and how to create a treatment plan can be difficult. The team at Tilton’s Therapy provides occupational, physical, and speech therapy for children who have developmental or intellectual disabilities and so much more. Contact our team to learn more or to register a new patient.